lu lu lu lupus face

1063-lady_gaga

Ok, so I don’t know if any of you heard or read all of the hoopla in late May about Lady Gaga having lupus. It’s not clear if she does or not. She says she has “borderline positive test results,” which is confusing to me but so is lupus so there you go. Her aunt also died from lupus.

If this is actually true, then hip hip hooray! You feeling me? I mean, I’m sorry if you do have it, Gaga, because lupus sucks. I can vouch for that. However, giving lupus the face of Lady Gaga would be fantastic as far as education and awareness.

She recently donated the necklace she wore in her Poker Face video to the Lupus Foundation of America,  which I thought was really cool. 

And now, Snoop Dog has come forward to say his daughter has lupus. Poor dear. While I feel awful for her and hope she is doing well, BRING ON THE PUBLICITY!

In my corner of the lupus world, all of my stomach tests came back fine. The ultrasound was fine. The tech even said “My, you have a beautiful pancreas!” (I shit you not.)

They now think it is my lupus meds causing the problems, specifically the ones that help me feel human every day. Awesome! (sung in really high operatic voice) I’m tapering down off of them slowly but UGH, it sucks. I’m sure that’s where my stank mood is coming from. Pain has a tendency to make you hate everyone and everything.

On the plus side, my stomach issues are getting a little better. Sounds bizarre to say that’s the plus side. I’m still particularly enjoying food at all. It’s just fuel.

I have a call into my rheumatologist to discuss the next steps with my treatment. Lessening stomach pain = great! Constant pain and super achy joints = not so great. In the morning, before I take my pills, it’s difficult to grip my tea mug. I mean, I can, but it hurts. Mornings are tough. It takes me a bit to get going and now that some of my drugs are being cut out, it’s taking me a bit LONGER to get going.

 

Seeking out humor last night, Peter and I watched Daniel Tosh’s Completely Serious. You can stream it for free on Netflix too. The demographic is very obviously men 18-42, but throw me in there too because the guy is hilarious. I love him. Warning: He is wildly offensive. Wildly. Did I say he was offensive? Yes. He is. He’s also super smart, kind of geeky and has fantastic random pop culture references. So now, I love him.

I’m sure I’m late to the Daniel Tosh party but he has a show on Comedy Central called Tosh.O. I haven’t seen it but after checking out some clips of the show, it looks hilarious. Sort of Talk Soupish. Remember when Greg Kinnear hosted Talk Soup in the olden days?

School starts tomorrow. Hell to the yes. Although excited to be free of the blue eyed devils, I have caught myself being a bit sad that I won’t have Finn with me during the day anymore.The things that we would do during the day sometimes after I picked him up at 12:30 (museums, parks, shows, etc) will no longer be an option for us. He and Hadley don’t get home until 4:15. (Note: Upon closer inspection of my memories, I am now remembering Finn mostly squawking about being bored and wanting to go home to play Mario. So don’t think it was all sunshine and rainbows. The kids a professional whiner with a penchant for sweets. He’s lucky he’s gorgeous.)

Sad. And weird. But good. Change is good. Or so they say. (I didn’t say that last night when Peter was installing new software on my computer. I sounded like ET when he screams at Gertie. Change! AHHHHH! CHANGE!!!!!!) It was very gutteral. Not cute.

 

Next Chapter: Provosts – The Elementary Years.

1 comments:

Confessions of a Mother, Lawyer & Crazy Woman | August 10, 2010 at 10:06 AM

Hate that your meds (term only pro patients can use without sounding like a-hats) are making you feel bad. Hope you get some balance. Chronic illness is a pain, literally.

As for school, YAY!!!!!!!!!!!!!!!!!!! for you and the kids. All I got. Watching the calendar here, summer has been loooooong 'round here and I am ready for fall.